Kevin
Kevin's status information has been moved to the bottom of this page.
Kevin's e-mail address is: kmchambers31@yahoo.com
Kevin's mail address:
Kevin Chambers
13 Hopedale St
Hopedale, MA 01747
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Kevin's status updates are written by Tara and published on the carepages:
March 20: I would like to just give a quick update. Kevin has had a few tough weeks
with shoulder pain so he has been taking medication to try and subside the pain which
has been causing him to be very tired. The pain was so bad that he couldn’t even
make it to Project Walk last week. Knowing Kevin and the high tolerance he has for
pain then I knew he really must be hurting.
Kevin has had a very busy week. Monday he had to have an ingrown toe nail taken
care of which is very common for people who can’t put weight on their feet. Tuesday
he had to have a procedure redone that previously had been done incorrectly
Yesterday he went for a checkup at Spaulding which hopefully explained the pain he
has been in. According to the doctor when Kevin was injured some of the nerves died
in his shoulder. Over time these nerves regenerate and in that process they are very
sensitive. The doctor did say that this pain in time will subside but unfortunately he
was unable to give any time table because no two patients are alike when it comes to
Spinal Cord injuries.
Other than a number of equipment issues , still waiting for his electric chair to be
delivered which supposedly will be coming on Monday but who knows, everything
going along smoothly. I guess that will do it for now I will update hopefully more
regularly to keep you all informed.
Thanks
Tara
March 1: Sorry about the delay in posting I know it has been a month however things
are going along slowly. Kevin started with massage 2 days a week, cranial sacral
therapy which brings the central nervous system into harmony by working with the
Cerebrospinal fluid and trigger point massage because this neck and shoulder area
are still way out of whack and nobody can really tell us why, I am beginning to think it
is the stupid wheelchair he has it does not fit him properly something I had mentioned
right along to everyone and there is still no word on his chairs coming. He continues
with Project Walk two days a week and has begun to get severe nerve pain again this
time all over his body (not sure if we are overstimulating his nervous system) so
hopefully this is the nerves trying to figure out what is going on - they are confused. I
hate to see him in so much pain however if it translates to feeling it will be a good
thing!
Not sure if you all are aware after having his van for only two weeks it was hit thank
goodness no one was in it so no one got hurt so we had to get a rental - no word on
his. Just another thing to deal with that will make us stronger!!!!!!
February 8: Kevin just finished 3 weeks at PW. He is able to feel, more then 50% of
the time, touching on his left foot. His shoulder pain has gotten considerably better, it
still is sore but no meds are needed. Check out some of the pictures. He may even be
on their website for Boston clients near the end of the month.
January 28: On Friday Kevin called me into his room to show me that he was able to
lift his right arm with control something he has not been able to do at all. He loses it
after doing so many times but later it does come back. He was so excited to show
everyone. Funny thing is he doesn't remember that is how the left started he couldn't
move that at all either and this am he discovered he could move that in a different way
then he could before. He has much more severe nerve pain (which translates to
burning) in both his legs and I myself think this is all due to PW! I say this because he
does not have those feelings in his arms and I cant explain that. They are so
aggressive with what they have him doing it is unbelievable to watch and compare to
the last 4 months. I posted some pictures of him there. I am sure I will have many more.
January 23: Kevin has been home for one week. Of course it has not gone smoothly
at all. Equipment is not correct and medications took a week to straighten out and I
have found out through a process of phone calls that there is no record of
wheelchairs being ordered. I am still working on this to find out what happened, have
not heard from anyone yet. Kevin started Project Walk yesterday afternoon. I think it
is going to be great for him. He already in two hours did more than ever at Spaulding.
I realize it is probably like comparing apples and oranges in regards to restrictions the
hospital has to follow and the fact they have so many patients they surely could not
do as much work with one person because Project Walk is one on one therapy, but
the fact that yesterday Kevin was put in the standing frame for the first time since his
injury, something that had not happened in the last four months for whatever reason
and he was in it for 5-6 mins and was fine. They also had him sitting alone trying to
balance, not for long but it is a start. They put him on a Total Gym machine for weight
bearing exercises and had him lying on his stomach holding himself up with his
elbows. It was extremely hard work for Kevin but he needs to strengthen his shoulders
more so they will be able to work below that level. We both liked it very much and I
hope it is just the beginning for great improvements for Kevin. They allowed me to
take pictures I hope to have a few up for all to see.
January 15: All went pretty smooth. Of course they were on time who would have
thought that, not one person I saw left when they said they were suppose to leave, so
we were not there on time, we were waiting for the equipment to arrive and they were
all waiting for us. So leaving was kind of hectic which I think was a good thing not time
for too much crying. Kevin said his goodbyes and told them all he would be back to
visit. Some that we knew we would not see again was hard and we couldn't find
Charlotte anywhere to say goodbye but we will stay in touch with her. Kevin is happy
to be home. Thanks again to everyone of you who helped make this much easier for
us by working on the house, bringing us the wonderful meals, it did feel good to sit
down at the kitchen table and eat like human beings not running down to the cafeteria
or for some of us the North End and being their for all the events that have taken
place for Kevin. I cant say it enough but your support has meant more to me than I
can put into words. THANKS TARA
January 14: Well at this time tomorrow Kevin should be home in HIS bed after a very
long 5 months! The house is ready and so are we. I will hopefully be turning this
update thing over to him in the near future. Will keep you all posted as to how we
made out on saying goodbye I am sure it will be difficult.
January 5: Well I know that is has been awhile but same old thing going on at
Spaulding. We were told that Kevin has until Jan 15th and I know for sure he will be
home then. The house is coming together! Without the help of all the friends, Brian
Main and Steve Gervais for the planning and to all of you who showed up to do
whatever was needed, definitely too numerous to mention but you all know who you
are and even the people we have just met, namely Richie this would not have been
possible this quick and Kevin would be coming home to a disaster! WE CANT THANK
ALL OF YOU ENOUGH!!!!! I know Kevin is getting anxious with the date changing all
the time and him wondering how it is all going to work once he gets home but because
of all of you his transition home will be much easier.
Also wanted to tell you all that I have signed Kevin up for a program called Project
Walk. Projectwalk.org. It is a recovery based rehab approach (non-traditional). We
are going into this with an open mind, we are not expecting him to walk out of there we
are just hoping for him to get stronger and get more function back than thought
possible. I plan on keeping you all updated on his progress through this program but
wanted to let you know what is next on his long journey to recovery.
So with outpatient therapy, Project Walk and Acupuncture Kevin will be very busy but I
am sure he will be happy to have all this going on.
Click on this link for previous entries


Kevin meets Travis Roy
Tara, Kevin, Donny and Brian
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outside on patio at Spaulding.
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Kevin, Brian, Krystal and Dave with t-shirts
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Standing frame again everytime he was a
little lightheaded and he said he could
actually feel the blood pooling in his legs.
THis is a power plate machine developed for
astronauts after being in zero gravity which is
what Kevin is like just sitting in the
wheelchair he helps with bone density here
they were doing pushups.